Last Chemo – Two Years Ago Today

Two years ago today I completed my 8th and final chemo treatment for breast cancer. Some days it feels like so long ago. But most days it feels like just yesterday.

My hair has grown back. It’s short, but no longer looks like I’ve been through chemo.

My energy has come back, for the most part.

My chemo brain still lingers, but no where near what it was during active treatment.

I’ve even gotten used to my new breasts. But I have to say, I don’t think I’ll ever get over loosing my natural breasts. Fake breasts just aren’t the same. For so many reasons.

While I’m grateful that I’m a ‘survivor’ (I hate that word, but that’s a blog post for another time), a day doesn’t go by that I don’t think about all I’ve been through in the last two years. It’s hard to move past a breast cancer diagnosis when you’re reminded of it every morning when you get dressed and see the mastectomy scars.

I do feel like I’m acting more like my pre-cancer self – going out with friends, regularly exercising, taking trips, not completely freaking out every time I feel an ache and pain. But as most people feel who have had a cancer diagnosis, the fear of recurrence is always in the back of my mind. You try to live as much of a normal life as possible, but it’s sometimes hard to quiet those dark thoughts in your head.

In the last two years since finishing chemo, I’ve joined a support group through the Young Survival Coalition. This organization focuses on supporting young women – 40 and under at diagnosis – with breast cancer. It’s so helpful to talk with other women who have gone through and are going through similar experiences as you. It makes me feel less alone and more understood.

I’m also trying to pay it forward a bit. There are newly diagnosed women that come to the support group every month. I remember how I felt at that time – scared, worried, nervous, anxious, etc. So I try not to sugar coat it and to tell these young women that breast cancer sucks. But I also tell them that we’ll be here to help her through it. Sitting and listening was the best help for me, so I’m trying to do the same for these women.

As I mark another milestone of one more year past my last chemo treatment, I’ve noticed that I’ve made other changes in my life too. Some are deliberate, some just happen after going through a traumatic event. I find myself spending less time doing things I don’t want to do. More time with people I want to be with. Going to places that have been on my list to visit. I used to be a person that read magazines cover to cover. Now if there’s an article I’m only mildly interested in, I’ll turn the page. No time for that now. Even if I am lucky enough to be alive for 50 more years, that’s a good life lesson, cancer or no cancer. I just wish I didn’t have to be diagnosed with breast cancer to learn it.

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My Two Year Cancerversary

Today is my cancerversary.

There are different days that people choose as their cancerversary. Some people use the day they’re diagnosed. Others use the day that they are declared cancer free. For me, I choose the day of my mastectomy – when they removed the tumor in my breast and the tumors that spread to my lymph nodes – and they considered me cancer free.

My mastectomy was on April 17, 2012. That’s two years ago today.

I’ve been thinking about this day for weeks. I was really expecting to be celebrating. I’ve been cancer free for two years. That’s kind of a big deal. Actually not kind of. It is a big deal.

And most importantly, I’m still here.

My prognosis at diagnosis was good, but you just never know what will happen. I knew that reality before, but cancer reinforced my belief that life is unpredictable and bad shit happens. Not much you can do about that.

So I figured I would be really happy to be reaching the two year mark. But I woke up this morning to find myself feeling melancholy. That’s actually a nicer word than what I’m really feeling. A more accurate word is just downright sad.

Although I’m physically feeling good after all my body has been through – a mastectomy, chemo and radiation – I seem to find my thinking, “Is this really my life now?”

Survivorship is hard. I know I’m one of the lucky ones. I did survive. But a day doesn’t go by that I don’t think about my cancer coming back or showing up somewhere else. 30% of early stage breast cancer comes back as stage 4. I was stage 2 at diagnosis. Fingers crossed I don’t become stage 4.

Don’t get me wrong, I think I’ve made good progress in the last two years. And I’m proud of myself for that. I’ve been getting back to the things I used to do before cancer – going out with friends, visiting my family, working normal hours, going on trips, swimming, running, yoga. And I have more good days than bad ones.

But I now know that my life will never be like it was before cancer. My body aches like a 90 year old lady sometimes. I’m still getting used to my new body – both how it looks and how it feels. I get tired a lot earlier in the evening than I used to before. I now have a pill box to organize my daily medication, so I don’t forget to take it. I guess that’s what makes me sad today.

Today reminds me that I’ve lost a lot of my carefree tendencies. I take life a lot more seriously. Now I wonder how long I have to do the things that I really want to do. Will I get to have kids? If I do, how long will I be around to be a part of their lives.

I’ve been lucky to have found a great support group through the Young Survival Coalition. These women that I get together with every month make me feel less alone. We can talk about our fears and concerns. And how hard survivorship is. We can even laugh about things like forgetting where we parked our cars because of our chemo brain.

They say that eventually you stop thinking about cancer every day. I hope they’re right. But its hard for me to imagine that day. Right now it feels like two steps forward and one step back. I guess I just continue to do what I’ve done over the last two years – just take it one day at a time.